What Happens If a Hospice Patient Goes to the Hospital?

When a loved one receives hospice care, families may assume that going to the hospital is no longer an option. However, hospital visits can still happen during hospice, depending on the patient’s medical needs and the reason for seeking treatment.

What happens if a hospice patient goes to the hospital? The answer depends on the circumstances, including whether the hospital visit is related to the terminal illness, whether the goal is comfort or curative treatment, and whether the hospice team is involved in coordinating care.

Understanding how hospice and hospital care work together can help families make informed decisions, respond to emergencies, and protect their loved one’s comfort and wishes.

Can a Hospice Patient Go to the Hospital?

Yes, a hospice patient can go to the hospital. However, the decision should be guided by the patient’s goals of care, medical needs, and hospice plan.

Hospice focuses on comfort and quality of life for people with a terminal illness. Rather than pursuing treatments intended to cure that illness, hospice care emphasizes managing pain and other symptoms, providing emotional and spiritual support, and helping patients remain as comfortable as possible.

That does not mean patients can never receive hospital treatment. A hospice patient may need hospital care for an unrelated medical condition, an injury, or a symptom crisis that cannot be adequately managed in their current setting.

Whenever possible, families should contact the hospice team before going to the hospital. Hospice professionals can help assess the situation, explain available options, and determine whether the problem can be managed at home or requires hospital evaluation.

What Happens If a Hospice Patient Goes to the Emergency Room?

If a hospice patient develops concerning symptoms and arrives at an emergency department, the hospital team will assess the patient’s condition and determine what treatment may be necessary.

If possible, let the emergency department know that the patient is enrolled in hospice. Provide the name and contact information of the hospice provider, along with relevant medical information and advance care planning documents.

The emergency department may contact the hospice team to understand the patient’s care plan, medical history, medications, and preferences.

A hospital visit does not automatically mean hospice care must end. The appropriate plan depends on the reason for the visit, the patient’s wishes, and applicable coverage requirements.

Does Going to the Hospital Mean Hospice Is Discontinued?

No. A hospital visit does not automatically end hospice enrollment.

However, the circumstances matter. Under the Medicare hospice benefit, patients elect hospice care with an understanding that the focus will be on comfort rather than curative treatment for the terminal illness.

If a patient needs hospital care for a condition unrelated to the terminal illness, hospice may continue while the unrelated condition is treated, provided the care is appropriately coordinated and Medicare requirements are met.

If the patient seeks hospital treatment intended to cure the terminal illness, the situation may be more complicated. Depending on the circumstances, the patient may need to revoke the Medicare hospice election to pursue treatment that is inconsistent with the hospice plan.

Revoking hospice is a formal choice made by the patient or their authorized representative, as applicable. It is not the same as automatically losing hospice eligibility after a hospital visit. A patient who revokes hospice may be able to elect hospice again later if they continue to meet eligibility requirements.

Who Pays for the Hospital Visit?

Payment depends on the reason for the hospital visit, the patient’s insurance, and whether the services are related to the terminal illness.

For patients using the Medicare Hospice Benefit, hospice is generally responsible for arranging care related to the terminal illness and related conditions according to the hospice plan.

Medicare generally does not cover separate hospital treatment for the terminal illness outside the hospice benefit unless the patient revokes the hospice election or another applicable exception applies.

Hospital treatment for an unrelated condition may be covered under the patient’s regular Medicare benefits, subject to applicable rules and cost-sharing requirements.

Families should not assume that Medicare or the hospice provider will automatically cover every hospital charge. Unexpected emergency department visits, admissions, and treatments can create billing questions.

What If a Hospice Patient Needs Emergency Treatment?

Families may worry about whether calling 911 conflicts with hospice care. The answer depends on the circumstances and the patient’s wishes.

Hospice patients can experience sudden changes, including severe pain, difficulty breathing, falls, bleeding, or changes in consciousness. Some of these symptoms may be managed by the hospice team, while others may require emergency evaluation.

If a change occurs, call the hospice’s 24-hour support number when it is safe to do so. The hospice nurse can help determine the appropriate response and may be able to visit the patient.

If the patient has severe, immediately life-threatening symptoms, call emergency services if that is consistent with the patient’s care preferences and advance directives. Make sure emergency responders know the patient receives hospice care and share any relevant advance directive or do-not-resuscitate documentation.

Can Hospice Manage Symptoms Without a Hospital Visit?

In many cases, yes. Hospice teams are trained to help manage common end-of-life symptoms, including pain, nausea, anxiety, restlessness, and breathing discomfort.

Hospice care generally includes access to clinical guidance 24 hours a day, seven days a week. Depending on the patient’s needs, the team may provide instructions over the phone, arrange an in-person nursing visit, adjust the care plan, or evaluate whether a higher level of hospice care is appropriate.

Some symptom crises can be managed at home. Others may require general inpatient hospice care when symptoms cannot be adequately controlled in the patient’s usual setting.

Families should not feel they must manage a concerning change alone. Contacting hospice promptly can help determine the safest and most appropriate next step.

How Families Can Prepare for a Hospital Emergency

Planning ahead can reduce confusion if a hospice patient needs urgent medical attention.

Consider taking these steps:

  • Keep hospice contact information accessible. Save the 24-hour phone number in family members’ phones and post it somewhere easy to find.
  • Understand the patient’s wishes. Discuss preferences about hospitalization, life-sustaining treatments, and comfort-focused care before a crisis occurs.
  • Organize important documents. Keep advance directives, medication lists, and other relevant medical records readily available.
  • Ask about emergency procedures. Find out when to call hospice, when emergency services may be appropriate, and how hospital visits affect coverage.
  • Communicate clearly with healthcare professionals. Tell emergency responders and 

hospital staff that the patient receives hospice care.

Helping Your Loved One Receive the Right Care

A hospital visit during hospice can feel confusing or frightening, but it does not automatically mean hospice has failed or that care must end. Sometimes a problem can be managed by the hospice team at home. 

In other situations, hospital evaluation or treatment may be appropriate.

The most important considerations are the patient’s comfort, wishes, medical needs, and understanding of the available options.

With clear communication and preparation, families can navigate unexpected medical situations while keeping their loved one’s comfort and dignity at the center of care.

Don’t Wait To Secure Hospice Care

GET STARTED TODAY

If your loved one is eligible for hospice care, don’t wait to find a program. Hospice care will provide your loved one with comfort, care, and support.